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Showing posts from July, 2012

Learning to be the Light

“I don't get it,' Caroline said, bemused. 'She's the only one with wings. Why is that?'
There were so many questions in life. You couldn't ever have all the answers. But I knew this one.It's so she can fly,' I said.Then I started to run.”

― Sarah Dessen (The Truth About Forever)

I have not read "The Truth About Forever" by Sarah Dessen, but I saw this quote and a warm understanding churned within me.  My sweet precious little girl, Hayden Grace, was born with a genetic disorder, Angelman Syndrome.  These children are called "angels", not only because the term can be derived from the condition, named after a Henry Angelman who labeled it back in the 1960's, but because these children possess such a sweet innocence about them.  Their smile can light up a room.  I truly believe they have a direct connection to God above and they see the world through His eyes.

I have asked God hundreds of times "Why did you do this to my …